Kidney School Individual learning modules about kidney disease, treatment options, etc.
Life Options Rehabilitation Program Educational materials and links for renal patients.
National Transplant Assistance Fund (NTAF) Assists patients with fundraising and provides grants for eligible patients.
Renal Support Network Helps patients and families with kidney disease communicate with other patients and families with kidney disease.
Transplant Living Sponsored by UNOS, provides patient information regarding transplant.
Transplant Patient Partnering Program (TPPP) Provides patient education materials.
Transweb News and events for transplant patients.
Transplant Recipients International Organization (TRIO) San Francisco Bay Area
American Society of Transplantation Patient educational brochures in English and Spanish.
Centerspan News, government and professional articles on transplantation.
Children’s Organ Transplant Association (COTA) Resources for children with transplants. On line brochure.
Ikidney.com Patient education articles about kidney disease.
Kidney & Urology Foundation of America, Inc. Dedicated to helping millions of Americans avoid the debilitating effects of kidney, urinary, and related diseases and to fostering groundbreaking research.
National Foundation for Transplants Health care and financial support, services and patient advocacy for transplant candidates, recipients, and their families.
Memphis TN 38119
(800) 489-3863
National Kidney Foundation (NKF) Information on organ donation, renal transplant, and dialysis.
New York NY 10016
(212) 889-2210/(800) 622-9010
TSO – Transplant Support Organization Westchester Chapter
TSO - Transplant Support Organization Staten Island Chapter
TRIO – Transplant Recipients International Organization Long Island Chapter
TRIO – Transplant Recipients International Organization National
Washington, DC 20037
800-trio-386
TSL – Transplants Save Lives Rockland Chapter
American Association of Kidney Patients patient information about kidney disease.
American Diabetes Association Excellent information about Type I and Type II Diabetes.
1701 North Beauregard Street
Alexandria, VA 22311
800-diabetes
American Kidney Fund (AKF) Provides education, research and financial assistance for kidney patients.
Rockville, MD 20852
800-638-8299
Polysystic Kidney Research Sharing Articles, audiotapes and online resources covering the basic PKD.
Kansas City, MO 64114-3367
800-pkd-cure
United Network for Organ Sharing (UNOS) Statistics about transplants and transplant centers.
Richmond, VA 23218
804-782-4800
Both books are available at Amazon.com or ordered at local bookstores.
Chronically Happy Joyful living in spite of Chronic Illness by Lori Hartwell.
New Life: Lessons in Faith and Courage from Transplant Recipients By Bob Violino.
