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TSO Newsletter

And the Beat Goes On . . .

Click below for TSO Newsletters

May/June 2008 Newsletterr 2007 Newsletter

March/April 2008 Newsletter

January/February 2008 Newsletter

 

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A note from Jeff Graham:

We finished our last speaking engagement for this school year today and I just finished entering the class attendance. A new milestone has been reached! We spoke to EXACTLY 5,000 students since the beginning of September ’07 in Westchester, Dutchess and Putnam counties. Our total since the program’s inception in 2000 is now 34,345.

I want to thank you that joined us, for your participation this year and for helping us to hit this impressive mark. I look forward to working with you again next year in continuing to educate and inform our high school students.

Warm regards,

Jeff Graham

10th Anniversary

As we celebrate our 10th year anniversary, we recall many interesting meetings, events and projects. A significant focus of our group has been the school project where members of TSO have presented a program to high school health classes on transplant awareness. Over 34,000 students have heard of the need for organ donation since TSO began the program over six years ago. At the start of each class it is emphasized that the purpose of the presentation is not to ask students to agree to donation. The purpose is strictly educational, giving facts and figures about the benefits of donation, leaving the decision to donate, or not, up to each person. They are asked to discuss their decision with their family.

Although our primary mission as an organization is education and support, we do like to party and celebrate our new lives. So for our June meeting, we had a record turnout for a delicious buffet supper. We welcomed new members and got reacquainted with some of the older ones.

We’re always looking for new members. Join us at our next meeting.

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Celebrating the Miracle
Cori Maass, LCSW

When I’m traveling any distance in my car I find that the time passes more easily if I listen to a book on tape. I just finished listening to A Change of Heart, by Claire Sylvia, a compelling, true story of a woman who received a heart-lung transplant in the early 1990’s. Much of the story focuses on her post transplant experience filled with vivid dreams and the appearance of unexpected new cravings, interests and attitudes, all of which she strongly attributes to cellular memory. These sensations led Sylvia to feel intimately connected to her donor in both visceral and emotional ways and it was fascinating to get a glimpse into her experience of feeling so linked to ‘him’ inmind, body and soul. Sylvia had been very close to death prior to the transplant and in the book she shared her powerful feelings of awe and gratitude for the miracle of this gift of life.

Sylvia’s story once again reminded me that as a transplant recipient there have been times that I, too, have felt strongly connected to my donor. Listening to this story, though, was a good reminder to me that my life has a primary purpose to honor and celebrate the gift I’ve received from my donor and his family, and to always be mindful of the miracle of my own gift of life. You’d think that we transplant recipients would never “forget,” yet I suppose that every time we let our mind well on negativity, disappointments, frustration and anger we are in some way ‘forgetting’ the miracle and ‘forgetting’ our gratitude. Also, whenever we make unhealthy choices and when we’re distracted by self-defeating attitudes and behaviors, aren’t we also ‘forgetting’ the joy of being alive? As our 2007-2008 TSO season begins, I’d like to invite you to join me in rededicating ourselves to a daily ritual of paying attention to all that we have, to express gratitude and to commit ourselves, over and over again to living our lives with love, wisdom and compassion. Like the mportance of regularly watering a precious plant, our own daily conscious practice can reinforce our ability to ‘celebrate the miracle’ and can open the way to our living the happiest and most joyful life.

If you’d like to listen to the book on tape, A Change of Heart by Claire Sylvia, contact Cori at cori@maass.org or by calling 914-686-5616.

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FACTS ABOUT TRANSPLANTATION IN THE UNITED STATES

 

On March 21, 2008 , the OPTN National patient waiting list for organ transplant includes the following:

 

 

•  79,482    registrations for a kidney transplant.

•  16,932    registrations for a liver transplant.

•  1,638   registrations for a pancreas transplant.

•  223   registrations for a pancreas islet cell.

•  2,324    registrations for a kidney-pancreas transplant.

•  225   registrations for an intestine transplant.

•  2,679    registrations for a heart transplant.

•  103    registrations for a heart-lung transplant.

•  2,145   registrations for a lung transplant.

•  105,751   TOTAL REGISTRATIONS

 

 

•  75,034    patients waiting for a kidney transplant.

•  16,390    patients waiting for a liver transplant.

•  1,620   patients waiting for a pancreas transplant.

•  223    patients waiting for a pancreas islet cell.

•  2,251    patients waiting for a kidney-pancreas transplant.

•  224   patients waiting for an intestine transplant.

•  2,669    patients waiting for a heart transplant.

•  103    patients waiting for a heart-lung transplant.

•  2,125    patients waiting for a lung transplant.

•  98,186   TOTAL PATIENTS*

 

 

NOTE: OPTN/UNOS policies allow patients to be listed with more than one transplant center (multiple-listing), and thus the number of registrations is greater than the actual number of patients.

 

* Some patients are waiting for more than one organ, therefore the total number of patients is less than the sum of patients waiting for each organ.

Numbers of Transplants Performed, 2007**

•  16,622    kidney (no pancreas) transplants (6,036 living donors)

•  6,492    liver transplants.

•  469   pancreas (no kidney) transplants.

•  862    kidney-pancreas transplant.

•  198   intestine transplants.

•  2,210    heart transplants.

•  30   heart-lung transplants.

•  1,469   lung transplants.

•  28,352   TOTAL

Number of Donors Recovered, 2007**

•  8,087    Deceased

•  6,306   Living

•  14,393   TOTAL

 





 

During 2007 6,411 patients were removed from the OPTN National patient waiting list for reason of death.**

 

** Based on OPTN data as of February 29, 2008. Double kidney, double lung and heart-lung transplants are counted as one transplant.

NOTE: Data subject to change due to future data submission or correction.

 

As of May 29, 2007, OPTN membership included the following:

 

•  257     Transplant Centers

•  2     Business Members.

•  58     Operating Organ Procurement Organizations (OPOs)

•  155      Histocompatibility Laboratories

•  10      General Public Members.

•  23   Medical/Scientific Organizations

•  12    Individual

•  412    TOTAL*

 

 

* There are 8 OPTN members that operate both transplant centers and in-house OPOs and 97 that operate both transplant centers and in-house histocompatibility laboratories. These members are included in both the count of transplant centers and operating OPOs. For this reason, the total number of members is less than the sum of the different categories.  

 

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